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Human Flourishing in an Age of Gene Editing$
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Erik Parens and Josephine Johnston

Print publication date: 2019

Print ISBN-13: 9780190940362

Published to Oxford Scholarship Online: August 2019

DOI: 10.1093/oso/9780190940362.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (www.oxfordscholarship.com). (c) Copyright Oxford University Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 16 October 2019

Welcoming the Unexpected

Welcoming the Unexpected

Chapter:
(p.15) 1 Welcoming the Unexpected
Source:
Human Flourishing in an Age of Gene Editing
Author(s):

Rosemarie Garland-Thomson

Publisher:
Oxford University Press
DOI:10.1093/oso/9780190940362.003.0002

This chapter proposes that recognizing the lived experience of disability as an informing principle of full moral personhood is essential to understanding what is required for human flourishing, which is a concept that ultimately supports a wide spectrum of human embodied existence. An attitude of humility and welcome toward the human experience of disability can serve to guide practice, policy, world building, and technology making in the world, all of which will enable individuals to flourish in their full distinctiveness rather than within narrowly conceived definitions of physical and genetic traits thought to be advantageous. A bioethics that intentionally and ethically shapes society, instead of shaping bodies, can urge us to create a shared world inhabitable by the widest range of human users, thus also a world that promotes the cultural, political, institutional, and material climate in which people with disabilities can most effectively flourish.

Keywords:   disability, genetic variation, flourishing, personhood, bioethics, built environment, world building, gene editing

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