Jump to ContentJump to Main Navigation
Medicine and Social JusticeEssays on the Distribution of Health Care$
Users without a subscription are not able to see the full content.

Rosamond Rhodes, Margaret Battin, and Anita Silvers

Print publication date: 2012

Print ISBN-13: 9780199744206

Published to Oxford Scholarship Online: May 2015

DOI: 10.1093/acprof:osobl/9780199744206.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (www.oxfordscholarship.com). (c) Copyright Oxford University Press, 2020. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 03 June 2020

Expanded Newborn Screening

Expanded Newborn Screening

Contemporary Challenges to the Parens Patriae Doctrine and the Use of Public Resources

Chapter:
(p.475) 38 Expanded Newborn Screening
Source:
Medicine and Social Justice
Author(s):

Jeffrey R. Botkin

Rebecca A. Anderson

Erin Rothwell

Publisher:
Oxford University Press
DOI:10.1093/acprof:osobl/9780199744206.003.0039

This chapter focuses on the practice of newborn bloodspot screening, with particular emphasis on the challenges to the parens patriae doctrine and the allocation of public resources for such endeavor. Nearly every newborn in the United States is screened for certain genetic diseases in order to identify children with serious and treatable conditions that respond to timely treatment. However, some programs screen for conditions for which no current treatment exists, and in some states, even when effective treatment is available, there is no provision for affected children to receive the necessary care. A further problem of justice is that parents are not adequately informed about what is being done and their consent for screening is rarely obtained. The chapter recommends changes in how these program are administered that would promote justice and improve transparency and trust in the health care system.

Keywords:   newborn bloodspot screening, parens patriae doctrine, resource allocation, public resources, genetic diseases, children, justice, parents, transparency, health care

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .