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Palliative Care in Amyotrophic Lateral Sclerosis – From Diagnosis to Bereavement, 3rd Edn | Oxford Scholarship Online
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Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement, 3rd Edn

David Oliver, Gian Domenico Borasio, and Wendy Johnston

Abstract

Amyotrophic lateral sclerosis (or motor neuron disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. This book reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team ... More

Keywords: amyotrophic lateral sclerosis, motor neuron disease, ALS, palliative care, neurology team, psychosocial care

Bibliographic Information

Print publication date: 2014 Print ISBN-13: 9780199686025
Published to Oxford Scholarship Online: May 2014 DOI:10.1093/acprof:oso/9780199686025.001.0001

Authors

Affiliations are at time of print publication.

David Oliver, editor
Consultant Physician in Palliative Medicine, Wisdom Hospice, Rochester, and Honorary Reader, University of Kent, UK

Gian Domenico Borasio, editor
Professor and Chair in Palliative Medicine, University of Lausanne, Centre Hospitalier Universitaire Vaudois, Switzerland

Wendy Johnston, editor
Associate Professor Neurology and Director of ALS/Neuromuscular Programme, University of Alberta Hospital, Edmonton, Canada

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Contents

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Chapter 1 Amyotrophic lateral sclerosis/motor neuron disease

Christopher E. Shaw, Annika Quinn, and Emma Daniel

Chapter 3 Communication: breaking the news

Richard Sloan and Gian Domenico Borasio

Chapter 4 Decision-making

Wendy Johnston

Chapter 5 Advance directives

Gian Domenico Borasio and Raymond Voltz

Chapter 9 Pain, psychological distress, and other symptoms

David Oliver, Gian Domenico Borasio, and Wendy Johnston

Chapter 10 Psychosocial care

Sue Smith and Maria Wasner

Chapter 11 Spiritual care

Robert Lambert

Chapter 12 Multidisciplinary care: physiotherapy

Ulrike Hammerbeck and Emily Jay

Chapter 13 Multidisciplinary care: occupational therapy

Chris Kingsnorth and Sarah Lavender

Chapter 16 Complementary and alternative medicine

Gregory T. Carter, Sunil Kumar Aggarwal, Michael Weiss, and Richard S. Bedlack

Chapter 17 End-of-life care: ethical issues

Leo McCluskey, Lauren Elman, and Wendy Johnston

Chapter 20 No time to waste: a family’s journey from diagnosis to bereavement

Marika Warren, Michelle Warren, and Douglas Warren