Jump to ContentJump to Main Navigation
Participatory Research in Palliative CareActions and Reflections$
Users without a subscription are not able to see the full content.

Jo Hockley, Katherine Froggatt, and Katharina Heimerl

Print publication date: 2012

Print ISBN-13: 9780199644155

Published to Oxford Scholarship Online: January 2013

DOI: 10.1093/acprof:oso/9780199644155.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (www.oxfordscholarship.com). (c) Copyright Oxford University Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 20 August 2019

Facilitating bereavement support for people with intellectual disabilities in England

Facilitating bereavement support for people with intellectual disabilities in England

(p.86) Chapter 8 Facilitating bereavement support for people with intellectual disabilities in England
Participatory Research in Palliative Care

Sue Read

Oxford University Press

This chapter explores action research involving people with intellectual disabilities (ID). It will describe the author's journey of discovery from conducting research on people with ID to working alongside with people with ID as part of the emancipator element of the participatory action research (PAR) approach. The chapter introduces a number of PAR studies that were developed from practice, embedded in practice and produced a product (a manual, booklet, electronic tool) that would ultimately feed back into practice. Such collaborative efforts, which systematically build clinician feedback into their development and dissemination will make the resources more effective, flexible, more dynamic and more likely to be used. Research provided in this chapter demonstrates well that PAR was an excellent tool to engage with people with ID as well as a range of clinicians, academics, volunteers, and parents, promoting empowerment and acting as the catalyst for the sharing of personal experiences.

Keywords:   intellectual disabilities, participatory action research, bereavement, end of life care, marginalized populations, reflective practice

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .