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Human Tissue ResearchA European perspective on the ethical and legal challenges$
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Christian Lenk, Nils Hoppe, Katharina Beier, and Claudia Wiesemann

Print publication date: 2011

Print ISBN-13: 9780199587551

Published to Oxford Scholarship Online: May 2011

DOI: 10.1093/acprof:oso/9780199587551.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (www.oxfordscholarship.com). (c) Copyright Oxford University Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 20 November 2019

Discovering informed consent: a case study on the practices of informed consent to tissue donation in Austria 1

Discovering informed consent: a case study on the practices of informed consent to tissue donation in Austria 1

Chapter:
(p.169) Chapter 17 Discovering informed consent: a case study on the practices of informed consent to tissue donation in Austria1
Source:
Human Tissue Research
Author(s):

Milena D. Bister

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199587551.003.0017

This chapter presents an empirical case study on informed consent procedures for medical research on leftovers from surgery in Austria. It suggests a way to understand informed consent as a ‘boundary object’ between medical professionals and patient-donors. As such, informed consent might be better understood as an appropriate tool to satisfy divergent interests in the medical encounter than as a tool for patients' empowerment. It is argued that different motives for both obtaining and giving consent account for the contemporary unchallenged practice of informed consent. This can be seen as a contribution to the ongoing interdisciplinary analysis regarding the question of how to deal with informed consent in the area of tissue research and banking in the European Union and its associated countries.

Keywords:   informed consent, tissue donation, tissue research, boundary object, patient empowerment

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