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Supportive care for the person with dementia$
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Julian Hughes, Mari Lloyd-Williams, and Greg Sachs

Print publication date: 2009

Print ISBN-13: 9780199554133

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199554133.001.0001

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The view of the family carer

The view of the family carer

Chapter:
(p.27) Chapter 4 The view of the family carer
Source:
Supportive care for the person with dementia
Author(s):

Barbara Pointon

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199554133.003.0004

This chapter presents the author's own story about caring for her husband, who was diagnosed with dementia at age fifty-one. She says that caring for someone with dementia is not the same as caring for the frail elderly; it demands special knowledge, skills, and approaches. Although she tried her best to do it on her own she unintentionally made awful mistakes. What would have helped throughout the illness would have been a dementia care adviser, or a series of them, as a first stop for information of all kinds, practical advice and training, moral support and, when required, triggering services, equipment or higher levels of expertise. She also says that holistic supportive care, given by properly trained family carers and/or staff with ready access to informed professional advice and offered with love, creates quality of life for both people with dementia and their carers.

Keywords:   dementia, patient care, care adviser, caregivers

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