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Transforming the Culture of DyingThe Work of the Project on Death in America$
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David Clark

Print publication date: 2013

Print ISBN-13: 9780199311613

Published to Oxford Scholarship Online: September 2013

DOI: 10.1093/acprof:oso/9780199311613.001.0001

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Highlighting Experiences of Care

Highlighting Experiences of Care

Chapter:
(p.51) 3 Highlighting Experiences of Care
Source:
Transforming the Culture of Dying
Author(s):

David Clark

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199311613.003.0003

This chapter explores the different aspects of PDIA grant making and shows how they set the scene for further work that brought about innovations in policy and practice. PDIA, for instance, supported some outstanding work on the elucidation of personal experience at the end of life, from the perspectives of patients, families, and caregivers. In addition to clinical and individual perspectives on the experience of care at the end of life, PDIA also promoted the exploration of issues at the community level, seeing here an opportunity to engage in situated debates about care that reflected the concerns and views of people as citizens as well consumers of services.

Keywords:   Project on Death in America, PDIA, end-of-life care, palliative care, death, dying, grants, community care

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