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Family Carers in Palliative CareA guide for health and social care professionals$
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Peter Hudson and Sheila Payne

Print publication date: 2008

Print ISBN-13: 9780199216901

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199216901.001.0001

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Family carers of people with advanced organ failure and neurodegenerative disorders

Family carers of people with advanced organ failure and neurodegenerative disorders

Chapter:
(p.231) Chapter 13 Family carers of people with advanced organ failure and neurodegenerative disorders
Source:
Family Carers in Palliative Care
Author(s):

Janice Brown

Julia Addingto-Hall

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199216901.003.0013

This chapter examines the needs, conditions, and experiences of family carers of people with neurodegenerative disorders and advanced organ failure. It focuses on six disorders which currently receive limited attention from hospices and specialist palliative care services. These are multiple sclerosis, motor neurone disease (MND), Parkinson's disease, Huntington's disease, chronic heart failure, and chronic obstructive pulmonary disease (COPD). The findings reveal that these conditions pose distinct caregiving challenges and they negatively affect the physical and emotional well-being of the family carer, their quality of life, their social life, and their finances.

Keywords:   quality of life, organ failure, neurodegenerative disorders, multiple sclerosis, motor neurone disease, social life, finances, chronic heart failure, chronic obstructive pulmonary disease

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