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Palliative Care in Amyotrophic Lateral SclerosisFrom diagnosis to bereavement, 2nd Edn$
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David Oliver, Gian Domenico Borasio, and Declan Walsh

Print publication date: 2006

Print ISBN-13: 9780199212934

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199212934.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (www.oxfordscholarship.com). (c) Copyright Oxford University Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 05 December 2019

Personal Experiences

Personal Experiences

(p.325) Chapter 11a Personal Experiences
Palliative Care in Amyotrophic Lateral Sclerosis

Linda Centers

Oxford University Press

This chapter provides a personal experience of someone who had taken care and lived with an ALS patient. It tells the story of Linda Centers, a healthcare provider and a daughter who cared for her mother who had suffered from amyotrophic lateral sclerosis. In this chapter, she shares her experiences and suggestions related to the issues of profound loss and the experiences of abandonment. In her story, she shares her feelings of despair and fear in watching her mother waste away in complete lucidity, her feelings of loss and bereavement, and the chapter shares her pieces of advice to professionals and caregivers of ALS patients.

Keywords:   personal experience, Linda Centers, daughter, healthcare provider, profound loss, abandonment

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