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Palliative Care in Amyotrophic Lateral Sclerosis – From diagnosis to bereavement, 2nd Edn | Oxford Scholarship Online
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Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement, 2nd Edn

David Oliver, Gian Domenico Borasio, and Declan Walsh

Abstract

Amyotrophic lateral sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. This book reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology tea ... More

Keywords: amyotrophic lateral sclerosis, motor neurone disease, ALS, palliative care, neurology team, psychosocial care

Bibliographic Information

Print publication date: 2006 Print ISBN-13: 9780199212934
Published to Oxford Scholarship Online: November 2011 DOI:10.1093/acprof:oso/9780199212934.001.0001

Authors

Affiliations are at time of print publication.

David Oliver, editor
Consultant Physician in Palliative Medicine, Wisdom Hospice; Honorary Senior Lecturer at the Kent Institute of Medicine and Health Sciences, University of Kent, UK

Gian Domenico Borasio, editor
Professor and Acting Chairman, Interdisciplinary Center for Palliative Medicine; Head, Motor Neurone Disease Research Group, Department of Neurology, University of Munich, Germany
Author Webpage

Declan Walsh, editor
Professor and Director, The Harry R Horvitz Center for Palliative Medicine, Cleveland Clinic, USA

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Contents

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Chapter 3a Communication: Breaking the News

Richard Sloan, Dieter E. Pongratz, and Gian Domenico Borasio

Chapter 3c Advance Directives

Gian Domenico Borasio, and Raymond Voltz

Chapter 4b Control of Symptoms: Dysphagia

Edith Wagner-Sonntag, and Mario Prosiegel

Chapter 5 Psychosocial Care

Donal Gallagher, and Barbara Monroe

Chapter 6 Spiritual Care

Robert Lambert

Chapter 7a Multidisciplinary Care: Physiotherapy

Ulrike Hammerbeck, and Alison Garrett

Chapter 9a End of life Care: Ethical Issues

Leo Mccluskey, and Lauren Elman

Chapter 10 Bereavement

Ann Mcmurray, and Amanda Harris