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Ethics and Epidemiology$
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Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Print publication date: 2009

Print ISBN-13: 9780195322934

Published to Oxford Scholarship Online: September 2009

DOI: 10.1093/acprof:oso/9780195322934.001.0001

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Ethical Issues in the Interaction with Research Subjects and the Disclosure of Results

Ethical Issues in the Interaction with Research Subjects and the Disclosure of Results

Chapter:
(p.128) 7 Ethical Issues in the Interaction with Research Subjects and the Disclosure of Results
Source:
Ethics and Epidemiology
Author(s):

Andrea Smith

Paul A. Schulte

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780195322934.003.0007

Developments in epidemiologic methods such as large-scale cohort studies and the increased use of molecular and genomic samples have created new challenges in disclosure. Since epidemiology is focused on populations, disclosure should be motivated by population-level bioethics, public health ethics, and clinical bioethics. This chapter reviews various aspects of epidemiologic studies that affect the reporting of results: (1) subject recruitment and informed consent, (2) privacy and confidentiality, (3) interpretation of test and study results, (4) communication of individualized test results, and (5) communication of study results.

Keywords:   epidemiologic studies, subject recruitment, informed consent, privacy, confidentiality, communication of results

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