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The Future of BioethicsInternational Dialogues$
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Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

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Commentary

Commentary

Gatekeeping Access to Genetic Information: A Response to “Genetic Research to Facilitate Personalized Medicine: Ethical and Policy Challenges”

Chapter:
(p.298) 7.4 Commentary
Source:
The Future of Bioethics
Author(s):

Douglas Sipp

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199682676.003.0035

In this commentary in response to Maschke’s article, the author reviews the arguments made for and against the gatekeeping approach to access to personal genetic information by human research volunteers. While informed consent may be a sufficient condition for limiting donor access to their own genetic information, the rapid evolution of sequencing technologies may make the gatekeeping approach more untenable in the near future.

Keywords:   genetics research, human donors, information access

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