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Children's Palliative Care in Africa
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Children's Palliative Care in Africa

Justin Amery

Abstract

Children's palliative care has developed rapidly as a discipline, as health-care professionals recognise that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 84% of these are in the developing world. Despite the enormous need, provision of ch ... More

Keywords: dying children, palliative care, end of life, Africa, AIDS, cancer, developing world, health workers, symptom management, compassion

Bibliographic Information

Print publication date: 2009 Print ISBN-13: 9780199567966
Published to Oxford Scholarship Online: November 2011 DOI:10.1093/acprof:oso/9780199567966.001.0001

Authors

Affiliations are at time of print publication.

Justin Amery, editor
Specialist GP in Children's Palliative Care, Bury Knowle Health Centre, Oxford, UK; Consultant to Diana Princess of Wales Memorial Fund; African Children's Palliative Care Network; and Clinical Director, Hospice Africa Uganda

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Contents

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Chapter 1 Introduction

Dr Justin Amery

Chapter 2 Communicating with children and their families

Justin Amery, Gillian Chowns, Julia Downing, Eunice Garanganga, Linda Ganca, and Susie Lapwood

Chapter 3 Play and development

Sue Boucher, and Justin Amery

Chapter 4 Assessment and management planning

Caroline Rose, and Justin Amery

Chapter 5 Pain

Justin Amery, Michelle Meiring, Renee Albertyn, and Sat Jassal

Chapter 6 Respiratory symptoms

Justin Amery, and Michelle Meiring

Chapter 8 Gastrointestinal symptoms

Justin Amery, Michelle Meiring, and Caroline Rose

Chapter 9 Neurological symptoms

Justin Amery, Susie Lapwood, and Michelle Meiring

Chapter 10 Skin problems

Justin Amery, and Michelle Meiring

Chapter 11 Urinary symptoms

Justin Amery, and Michelle Meiring

Chapter 12 HIV/AIDS*

Justin Amery, Jenny Sengooba, Ivy Kasiyre, and Michelle Meiring

Chapter 13 Psychosocial and family care

Justin Amery, Nkosazana Ngidi, Caroline Rose, Collette Cunningham, Carla Horne, and Linda Ganca

Chapter 14 Pre-bereavement and bereavement

Justin Amery, Collette Cunningham, Nkosazana Ngidi, Eunice Garanganga, Carla Horne, and Jenny Ssengooba

Chapter 15 Spirituality

Justin Amery, Eunice Garanganga, and Carla Horne

Chapter 16 Palliative care for adolescents

Justin Amery, Julia Downing, and Collette Cunningham

Chapter 17 Ethics and law

Justin Amery, Joan Marston, and Nkosazana Ngidi

Chapter 18 Caring for children at the end of life

Michelle Meiring, and Justin Amery

Chapter 19 Caring for yourself

Justin Amery, Mary Bunn, Susie Lapwood, and Gillian Chowns

Section 6 Children's palliative care formulary for Africa

Chapter 20 Formulary

Justin Amery, and Sat Jassal

End Matter