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Advance Care Planning in End of Life Care$
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Keri Thomas and Ben Lobo

Print publication date: 2010

Print ISBN-13: 9780199561636

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199561636.001.0001

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Advance directives and Advance Care Planning: the US experience

Advance directives and Advance Care Planning: the US experience

Chapter:
(p.189) Chapter 17 Advance directives and Advance Care Planning: the US experience
Source:
Advance Care Planning in End of Life Care
Author(s):

Anne M Wilkinson

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199561636.003.0017

This chapter discusses the challenges of end of life, the ethical and legal foundations of advance directives (ADs) and Advance Care Planning (ACP) in the United States, the evidence base regarding the application of ADs and ACP in clinical settings in the USA, the lessons learned from the failure of the AD process in the US and the future of ACP. It notes that the history of the development of ACP in USA began with refusals of treatment and ADs but has now moved towards a greater emphasis on statements of preferences and wishes. ACP is more than documenting life-sustaining treatment choices or identifying a surrogate decision-maker; it is a comprehensive, continuing communication and ‘shared decision-making’ process between the patient, family, and providers designed to elicit patient values and health-related quality of life goals for treatment.

Keywords:   decision making, Advance Care Planning, United States, refusal of treatment, advance directives, end of life, communication

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