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Advance Care Planning in End of Life Care$
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Keri Thomas and Ben Lobo

Print publication date: 2010

Print ISBN-13: 9780199561636

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199561636.001.0001

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Advanced Care Planning: thinking ahead for parents and children

Advanced Care Planning: thinking ahead for parents and children

Chapter:
(p.167) Chapter 15 Advanced Care Planning: thinking ahead for parents and children
Source:
Advance Care Planning in End of Life Care
Author(s):

Angela Thompson

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199561636.003.0015

This chapter describes the spectrum of conditions involved requiring ACP in paediatrics, the challenges of ACP in paediatrics, and drivers, evidence base, tools, and pathways to support paediatric ACP. It also discuses maintaining support for the family at the time of and following death, and reflects upon messages from special journeys. The discussion suggests that families need care that is planned in partnership with them, is anticipatory, is regularly reviewed, takes account of the whole family's needs, including siblings, and especially the child/young person, enables choice, encompasses parallel planning, provides access to 24/7 expertise in symptom control, and engages in anticipatory bereavement care.

Keywords:   parents, paediatrics, bereavement care, anticipatory bereavement, symptom control

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