Down's Syndrome and dementia: a framework for practice to support people with Down's Syndrome and dementia living in generic care homes
Despite the recognized longevity of people with Down's syndrome, the age-related long-term care needs of this population have yet to be fully understood and addressed. Owing to an increase in medical and social interventions, people with Down's syndrome are living longer. This has led to the current awareness that there are a number of illnesses in later life that people with Down's syndrome are susceptible to, one of which is dementia. This chapter focuses on generic care provision and, in particular, the use by people with Down's syndrome and dementia of mainstream care home provision for older people when they are moved from other services, or need a placement when home or family care structures break down. It provides an overview of the demographics and policy imperative in developing stronger policy and practice responses to the needs of people growing older with Down's syndrome and dementia. It then turns to the proposed framework using a case study to illustrate the urgent requirement for more detailed research evidence and policy responses to this underserved area of practice.
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