The decision to decline to enrol in a clinical trial: a blind spot in the literature on decision-making for research participation
This chapter examines the decisions of parents of critically ill babies who had not consented to take part in research. Their decisions were based on a misunderstanding of the information they had been given. It is suggested that patients may be overburdened with information and perhaps in this kind of case better decisions could be facilitated by providing less information rather than more.
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