Cultural authority of informed consent: indigenous participation in biobanking and salmon genomics focus groups
This chapter focuses on the ethics of involving indigenous people in research. It describes the Democracy, Ethics and Genomics project, which was organized to compare across human and non-human genomics, using the examples of biobanking and salmon genomics. Researchers were able to recruit First Nations' participants to participate in focus groups related to human biobanking, but not salmon genomics and aquaculture. This differential response suggests that some members of indigenous groups may find it less objectionable to be asked to participate in social research for health-related topics than for salmon genomics with its more immediately political and environmental aspects.
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