(p.339) Appendix 2
(p.339) Appendix 2
List of useful websites for ALS patients
Please note: there are thousands of websites which claim to contain information relevant to ALS patients. However, in many cases the information has not been reviewed for accuracy and may sometimes be misleading or even directly aimed at obtaining financial profit by offering “miracle drugs” or other devices with no proven benefit. Therefore, some degree of caution is advisable when surfing the net for information on ALS.
The following websites all have a very high standard and offer reliable information, addresses and links to other websites of interest. This list, of course, is by no means exhaustive.
www.wfnals.org–the World Federation of Neurology ALS site. An excellent site with regularly updated clinico-scientific news on ALS and a worldwide list of ALS specialists and centres.
www.alsmndalliance.org–the International Alliance of ALS/MND Associations. Includes a directory of ALS societies worldwide.
www.alsa.org–the American ALS Association. This site has a great deal of relevant information.
www.mda.org–the American Muscular Dystrophy Association, which also runs a strong ALS care program.
www.mndassociation.org–the UK Motor Neurone Disease Association. www.scotmnd.org.uk – the Scottish Motor Neurone Disease Association. www.imnda.ie–the Irish Motor Neurone Disease Association. www.dgm.org–the German Neuromuscular Disease Association. www.alslinks.com–an Internet portal for ALS
www.alsnetwork.com–award-winning website dedicated to providing information to ALS patients.
www.dunitz.co.uk–contents and abstracts of each issue of the journal, “ALS and other motor neurone disorders”.
www.caregiver.org–the website of the Family Caregiver Alliance www.partnershipforcaring.org–the website of the Partnership for Caring, for carers www.ninds.nih.gov–the website of the National Institute of Health Neurologic Institute (p.340)