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Ethics and Epidemiology$
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Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Print publication date: 2009

Print ISBN-13: 9780195322934

Published to Oxford Scholarship Online: September 2009

DOI: 10.1093/acprof:oso/9780195322934.001.0001

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Ethical Issues in Genetic Epidemiology

Ethical Issues in Genetic Epidemiology

Chapter:
(p.182) 9 Ethical Issues in Genetic Epidemiology
Source:
Ethics and Epidemiology
Author(s):

Laura M. Beskow

Wylie Burke

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780195322934.003.0009

This chapter examines three selected issues that, although not unique to genetics, are becoming increasingly important in genetic epidemiology: federal policies for widespread data sharing, the use of “race” as a variable in research involving genetics, and concepts of community engagement. These issues are interrelated and represent areas of tension between participant protection and the quality and efficiency of research.

Keywords:   epidemiology, genetics, data sharing, race, genetic research, community engagement

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