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Ethics and Epidemiology$
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Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Print publication date: 2009

Print ISBN-13: 9780195322934

Published to Oxford Scholarship Online: September 2009

DOI: 10.1093/acprof:oso/9780195322934.001.0001

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Privacy and Confidentiality in Epidemiology: Special Challenges of Using Information Obtained without Informed Consent

Privacy and Confidentiality in Epidemiology: Special Challenges of Using Information Obtained without Informed Consent

Chapter:
(p.84) 5 Privacy and Confidentiality in Epidemiology: Special Challenges of Using Information Obtained without Informed Consent
Source:
Ethics and Epidemiology
Author(s):

Ellen Wright Clayton

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780195322934.003.0005

This chapter addresses the following questions: What values underlie privacy and confidentiality and what consequences follow from their breach? What values justify intrusion upon privacy and confidentiality without consent? Under what circumstances and by whom? How are these decisions to be made? What personal information can be disclosed? When? To whom? The values of individual privacy, confidentiality, and public goods cannot always be reconciled, so trade-offs are often required. The laws and regulations that address these issues are considered, identifying some of the ways in which they conflict with or fail to address these ethical issues.

Keywords:   privacy, confidentiality, ethics, information access, public goods

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