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Ethics and Epidemiology
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Ethics and Epidemiology

Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Abstract

In the ten years since the first edition of this book was published, there have been many important ethical developments in epidemiology and related fields in public health and medicine. These developments include implementation of the HIPAA privacy rules, the completion of the American College of Epidemiology (ACE) ethics guidelines and ACE policy statements on sharing data from epidemiologic studies, and the drafting of a public health code of ethics. This revised edition of the text includes selected chapters from the first edition, which have been updated and revised, along with several ne ... More

Keywords: confidentiality, ethics, epidemiology, genetics, HIV/AIDS, informed consent, institutional review boards, moral reasoning, public health practice

Bibliographic Information

Print publication date: 2009 Print ISBN-13: 9780195322934
Published to Oxford Scholarship Online: September 2009 DOI:10.1093/acprof:oso/9780195322934.001.0001

Authors

Affiliations are at time of print publication.

Steven S. Coughlin, editor
Centers for Disease Control and Prevention, Environmental Epidemiology Service

Tom L. Beauchamp, editor
Georgetown University
Author Webpage

Douglas L. Weed, editor
National Cancer Institute

Contents

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I FOUNDATIONS

1 Historical Foundations

Steven S. Coughlin

2 Moral Foundations

Tom L. Beauchamp

II INFORMED CONSENT, PRIVACY, AND CONFIDENTIALITY

4 Epidemiology and Informed Consent

Jeffrey P. Kahn, and Anna C. Mastroianni

III BALANCING RISKS AND BENEFITS

6 Ethical Issues in the Design and Conduct of Community-Based Intervention Studies

Karen Glanz, Michelle C. Kegler, and Barbara K. Rimer

8 Ethics in Public Health Practice

Robert E. McKeown, and R. Max Learner

9 Ethical Issues in Genetic Epidemiology

Laura M. Beskow, and Wylie Burke

11 Ethical Issues in International Health Research and Epidemiology

John D. H. Porter, Carolyn Stephens, and Anthony Kessel

IV THE REGULATORY CONTEXT AND PROFESSIONAL EDUCATION

13 Good Conduct and Integrity in Epidemiologic Research

Colin L. Soskolne, Peter H. Abbrecht, Nancy M. Davidian, and Alan R. Price

14 Ethics Curricula in Epidemiology

Kenneth W. Goodman, and Ronald J. Prineas

End Matter