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Genetics and Public Health in the 21st Century
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Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease

Muin J. Khoury, Wylie Burke, and Elizabeth Thomson

Abstract

With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in which people can be healthy, the integration of new genetic information in public health research, policy, and program development is unavoidable. Public health leadership is urgently needed to aid in the use of genetic information to improve health and prevent disease, and to address ethical, legal, and social ... More

Keywords: human genes, public health research, disease prevention, health promotion, genetics, newborn screening, genetic screening, communication issues

Bibliographic Information

Print publication date: 2000 Print ISBN-13: 9780195128307
Published to Oxford Scholarship Online: September 2009 DOI:10.1093/acprof:oso/9780195128307.001.0001

Authors

Affiliations are at time of print publication.

Muin J. Khoury, editor
Centers for Disease Control

Wylie Burke, editor
University of Washington, School of Medicine

Elizabeth Thomson, editor
National Human Genome Research Institute, National Institutes of Health

Contents

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I Genetics and Public Health: an Overview

4 Models of public health genetic policy development

Benjamin S. Wilfond, and Elizabeth J. Thomson

II Public Health Assessment

6 Epidemiology, molecular biology, and public health

Janice S. Dorman, and Donald R. Mattison

7 Surveillance for birth defects and genetic diseases

Lorenzo D. Botto, and Pierpaolo Mastroiacovo

8 Surveillance for hemophilia and inherited hematologic disorders

J. Michael Soucie, Frederick R. Rickles, and Bruce L. Evatt

10 Public health assessment of genetic susceptibility to infectious diseases: malaria, tuberculosis, and HIV

Janet M McNicholl, Marie V. Downer, Michael Aidoo, Thomas Hodge, and Venkatachalam Udhayakumar

III Evaluation of Genetic Testing

13 Newborn screening quality assurance

W. Harry Hannon, L. Omar Henderson, and Carol J. Bell

IV Developing, Implementing, and Evaluating Population Interventions

18 Genetics and prevention effectiveness

Scott D. Grosse, and Steven M. Teutsch

19 Impact of genetic information and genetic counseling on public health

Judith L. Benkendorf, Beth N. Peshkin, and Caryn Lerman

23 Public health strategies to prevent the complications of hemochromatosis

Wylie Burke, Mary E. Cogswell, Sharon M. McDonnell, and Adele Franks

24 Applying genetic strategies to prevent atherosclerosis

Roger R. Williams, Paul N. Hopkins, Lily L. Wu, and Steven C. Hunt

V Genetics and Public Health: Ethical, Legal, and Social Issues

VI Communication, Education, and Information Dissemination

28 Principles and practices of communication processes for genetics in public health

Celeste M. Condit, Roxanne L. Parrott, and Beth O'Grady

29 Training in public health genetics

Susan M. Caumartin, Diane L. Baker, and Carl F. Marrs

30 Consumer perspectives on genetic testing: lessons learned

Mary E. Davidson, Karey David, Nancy Hsu, Toni I. Pollin, Joan O. Weiss, Nachama Wilker, and Mary Ann Wilson

End Matter