Researching people who are terminally ill
This chapter examines the issues about researching people who are terminally ill. It analyses patient-based data and evaluates the range of methods that have been used to engage terminally ill people in the research process and their drawbacks. The chapter discusses the range of structured quantitative measures that seek to record patients' problems and sense of well being and explores these, portraying them with intricacies of personal outlook.
Keywords: terminally ill, research, terminal patients, patients' problems, quantitative measures, qualitative measures
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